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Views on population carrier screening for deafness

Title: Stakeholder attitudes on population wide reproductive carrier screening for inherited non-syndromic deafness

You are invited to take part in this research project, to explore your views on population genetic carrier screening for inherited forms of non-syndromic deafness.

What is the purpose of this research?

This research will provide evidence on the different views about population carrier screening for inherited forms of non-syndromic deafness. This evidence will be used to inform policy about whether this screening should be offered in the community in the future.

Who can be involved in this research?

We would like to talk to a range of individuals who have congenital hearing loss, are D/deaf or hard of hearing to gain a better understanding of the views individuals living with deafness.

What is involved if you decide to participate?

Participation involves taking part in a phone, zoom or face-to-face interview where you will be able to discuss your views on this topic. The interview may last around 30 minutes. Auslan interpreters are available to those who would like it.

If you would like more information about the study or you would be willing to participate in an interview, please contact: Lucinda Freeman 0411037378 or Lucinda.freeman@health.nsw.gov.au

The project investigators are Prof Edwin Kirk, Prof Jackie Leach Scully, Prof Martin Delatycki and Ms Lucinda Freeman

For more information:

Disclaimer: The information contained on this website is not intended as a substitute for independent professional advice.

18-Aug-2021 12:14 PM (AEST)