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New website bringing together families of children with Usher Syndrome in Australia

24 February, 2016 Ann Porter Parents

Usher syndrome is a rare genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction and up until now, there has been no support network in Australia dedicated to children. Two parents of recently diagnosed young children, have set up the Usher Kids Australia website as a resource and contact point for all families of children with Usher syndrome in Australia. We also hope it will be a valuable tool for clinicians and support services in contact with children with Usher syndrome nationally.

For more information: http://www.usherkidsaustralia.com/