Invitation to take part in the ANCHOR: Outcomes Matter eDelphi Surveys. ANCHOR (Australian National Child Hearing Health Outcomes Registry) is a research project to develop the foundations of a national registry for deaf and hard of hearing children. The registry is a way of collecting information about child hearing.
The aim of the ANCHOR: Outcomes Matter eDelphi survey is to find out from parents, and young
people who are deaf or hard of hearing as well as professionals who work with deaf or hard of
hearing children about:
- what information or ‘outcomes’ you think are most important to children who are deaf or
hard of hearing and their families.
An “outcome” is something that can be measured by service providers or researchers that can tell us how well children are progressing.
Through a series of focus groups and interviews in 2024, we have worked with parents, carers,
and people with lived experience to understand the different ‘outcomes’ that matter to them. Along with members of the Australian Childhood Deafness Research Community Advisory Group and the ANCHOR study team, we have developed a long list of ‘core outcomes’ generated from these focus groups/interviews and the scientific literature. These are grouped into different ‘core outcome domains’ in the survey.
Now, we need your help in ranking these core outcome domains, so that we can narrow down the list to the most important outcomes that child hearing health professionals/researchers/
stakeholders should measure in the future. We invite you to take part in an online survey to rank the outcomes that you think are most important to children who are deaf or hard of hearing and their families. This will help us understand what information hearing services should collect.
Who can take part?
You are eligible to take part if you are:
- a parent/carer of a child or young person who is deaf or hard of hearing (aged 0 to 26 years)
- a young person who is deaf or hard of hearing (aged between 16 to 26 years)
- a deaf adult who uses Australian Sign Language (Auslan)
- a health professional, early intervention or allied health worker, support or advocacy professional or educator who has worked with at least 10 children or young people who are
deaf or hard of hearing in the last 12 months - a researcher who has undertaken research into child hearing in the last 5 years
- a conference delegate attending the 2025 Australasian Newborn Hearing Screening Conference in Canberra
To take part in the survey:
Please follow this link to view the Information Statement. If you decide to take part, you can
continue to the survey: https://redcap.link/5bfnhdnx
Any questions or want more information?
Contact the ANCHOR team on (03) 9936 6080, or email us at anchor@mcri.edu.au.
More information:
- Participate in research | ADK
